We've shared before...
Ever since her detethering surgery, Evanna's interest in and ability to eat orally has changed dramatically. That hasn't changed.
On the way home from a day of appointments, we stopped for dinner where she ate nearly half of a mini quesadilla and a few sips of chocolate milk.
Then there was this day at home when she ate more than 1/4 cup of dry Cheerios, about two inches of burrito, and then wanted to drink some of her blend food.
She's started telling us if she wants "mouth" or "belly."
We had a visit with her nutritionist this week. We had to go because insurance won't pay for feeding supplies without a prescription from a nutritionist. We haven't seen a nutritionist for quite a while, and have been avoiding this one for over a year because she was mostly pushing formula. However this visit went fine. We must be doing something ok because...
... this was our visit summary. She had nothing to add other than we should increase vitamin D a little now that's she's older.
She also suggested we consider getting a assessment to see if we can do their intensive feeding program. If accepted, they drop tube feedings by 80% and see you three times a day for two weeks for intensive feeding therapy with the goal of increasing oral calorie intake enough to stop using the g-tube. With Evanna's medical anxiety, we don't though she's ready for that program at the moment, but we do plan on changing our routine at home to give her more opportunities to eat orally.
