FacebookInstagram
Evanna's Joy — This Is My Story

Latest Articles

We’re back!

Silverwood   ·  

So...early this year I became aware of an issue with the website. Long story short, it had been exploited last year, and the only way I could get the site stable enough to log in was a complete reinstallation of WordPress, which wiped everything (posts, media, etc). So I just left in maintenance mode since…

Continue reading

Silverwood: Accessibility that Rocks!

Accessibility, Silverwood   ·  

Note: the original post linked below was deleted from the Silverwood Express site in 2025. Strangely enough, it took place after I had posted a couple of Instagram posts that were critical of Silverwood and changes in policy and/or training in regard to accessibility. 🤷🏼‍♂️ Repost of our Silverwood Conductor post at https://www.silverwoodexpress.com/2024/01/22/silverwood-accessibility-that-rocks/ As we’re…

Continue reading

Silverwood Ticket Giveaway!

Accessibility, Silverwood   ·  

The 2023 season is well underway, and the Boulder Beach side is opening this Saturday, May 27th! We'll have several ticket giveaways during the season, but wanted to do something a little different for our first one. One of our main focuses will be on accessibility and how Evanna and others who have disabilities enjoy…

Continue reading

Upcoming Silverwood Giveaway!

Silverwood   ·  

The Silverwood season has begun! We'll be hitting full swing with the Boulder Beach side opening May 27, which would be a fantastic time to do our first set of ticket giveaways. And...I have a special plan for this one. Because it's just not enough to just do a post and a ticket giveaway. No…

Continue reading

Les Gove Park, Auburn

Uncategorized   ·  

Evanna loves being outside. Parks, however, are rarely truly accessible and inclusive despite being labeled as such or meeting ADA guidelines. As we visit area parks, we plan to document how well we feel they meet our idea of accessible, inclusive, and fun from the viewpoint of a young child in a wheelchair. We are…

Continue reading

Exercise Evanna’s Way

Uncategorized   ·  

We bought Evanna this crazy, noisy rubber chicken. She came up with a way to squeeze it that works out her arms. We are still working on her form though. LOL Archive note: this video could not be recovered. We are also working on her abs with sit ups. I'm not helping her at all;…

Continue reading

Weaning from the G-tube

Uncategorized   ·  

Many things have occurred to get us to where we are now: 1) Evanna's spinal cord detethering surgery resulted in an increased ability in swallowing and interest in eating. 2) Evanna passed her most recent swallow study for all thicknesses. She's supposed to limit thin liquids to small amounts while she practices, so we finally…

Continue reading

Inclusion and Independence

Uncategorized   ·  

"It's so great that you let her be independent." "You do so many cool things." "It's so awesome you guys let her do almost everything." "You are crazy to be trying to take a wheelchair out in a foot of snow, on an inaccessible trail,..." Ok, I made the last one up because sometimes I…

Continue reading

Trialing a Walker at PT

Uncategorized   ·  

With Evanna doing so much better with sitting on a bench and then pulling herself to a stand, high kneeling, and other physical tasks, I pushed to get her in a walker again. So we made plans to arrive at PT without her AFOs for kneeling (which is better without them) and then putting in…

Continue reading