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Electrical Stimulation Therapy
For those that have followed Evanna's journey, you know we've always aimed to make her life as full as we can, whether that is fighting ... -
Les Gove Park, Auburn
Evanna loves being outside. Parks, however, are rarely truly accessible and inclusive despite being labeled as such or meeting ADA guidelines. As we visit area ... -
Exercise Evanna's Way
We bought Evanna this crazy, noisy rubber chicken. She came up with a way to squeeze it that works out her arms. We are still ... -
Weaning from the G-tube
Many things have occurred to get us to where we are now: 1) Evanna's spinal cord detethering surgery resulted in an increased ability in swallowing ... -
Inclusion and Independence
"It's so great that you let her be independent." "You do so many cool things." "It's so awesome you guys let her do almost everything." ... -
Trialing a Walker at PT
With Evanna doing so much better with sitting on a bench and then pulling herself to a stand, high kneeling, and other physical tasks, I ... -
Really Good Day
Last night was Evanna's first night on the new bipap settings. They lowered the exhale pressure a tiny bit but drastically reduced the back up ... -
A Little Trip in to the Woods
This may be one of those "don't try this at home" things. Mika and I took Evanna for a walk close to home, taking a ... -
Sleep study 2019
Last week we got a call from Seattle Children's Sleep Center with a cancellation spot for an overnight sleep study. We took it. While Evanna's ... -
She PASSED!!!
That ice cream...that's doctor approved! Evanna passed her swallow study and is now allowed to eat and drink whatever she wants...small quantities of thin liquids ...
