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Evanna's Joy

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?

Latest Articles

  • Silverwood
    May 19, 2023
    by Scott

    Upcoming Silverwood Giveaway!

    The Silverwood season has begun! We'll be hitting full swing with the Boulder Beach side opening May 27, which would be a fantastic time to ...
    Read More
  • Doctors & Therapists
    July 29, 2022
    by Scott

    Electrical Stimulation Therapy

    For those that have followed Evanna's journey, you know we've always aimed to make her life as full as we can, whether that is fighting ...
    Read More
  • Accessibility, ADA, Fun Things to Do
    June 3, 2019
    by JoAnn Kuhn

    Les Gove Park, Auburn

    Evanna loves being outside. Parks, however, are rarely truly accessible and inclusive despite being labeled as such or meeting ADA guidelines. As we visit area ...
    Read More
  • Uncategorized
    May 14, 2019
    by JoAnn Kuhn

    Exercise Evanna's Way

    We bought Evanna this crazy, noisy rubber chicken. She came up with a way to squeeze it that works out her arms. We are still ...
    Read More
  • Uncategorized
    May 3, 2019
    by JoAnn Kuhn

    Weaning from the G-tube

    Many things have occurred to get us to where we are now: 1) Evanna's spinal cord detethering surgery resulted in an increased ability in swallowing ...
    Read More
  • Uncategorized
    April 19, 2019
    by JoAnn Kuhn

    Inclusion and Independence

    "It's so great that you let her be independent." "You do so many cool things." "It's so awesome you guys let her do almost everything." ...
    Read More
  • Uncategorized
    April 10, 2019
    by JoAnn Kuhn

    Trialing a Walker at PT

    With Evanna doing so much better with sitting on a bench and then pulling herself to a stand, high kneeling, and other physical tasks, I ...
    Read More
  • Uncategorized
    March 29, 2019
    by JoAnn Kuhn

    Really Good Day

    Last night was Evanna's first night on the new bipap settings. They lowered the exhale pressure a tiny bit but drastically reduced the back up ...
    Read More
  • Uncategorized
    March 27, 2019
    by JoAnn Kuhn

    A Little Trip in to the Woods

    This may be one of those "don't try this at home" things. Mika and I took Evanna for a walk close to home, taking a ...
    Read More
  • Uncategorized
    March 27, 2019
    by JoAnn Kuhn

    Sleep study 2019

    Last week we got a call from Seattle Children's Sleep Center with a cancellation spot for an overnight sleep study. We took it. While Evanna's ...
    Read More
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