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Look at My New Skill
Evanna has learned to say "no" to doing things that are "hard," so we have to find creative ways to motivate her to work on ... -
New Pulmonologist, New Hope
What could be better than Evanna demanding to eat her snack pouch orally? A new pulmonologist who actually listens to you, agrees with you, and ... -
Quality of Life
One of the main sources of fear and concern at the time of a spina bifida diagnosis, brought to us by doctors and nurses, is ... -
Thankful...
With today being Thanksgiving, I thought it fitting to write about thankfulness. Plus it's been on my mind for weeks. And last night as I ... -
Beyond the ADA
In preparing my thoughts for my meeting with the local Parks & Rec director (not quite at the planning stage, but formulating ideas), I came ... -
Evanna's Surgery...and Moving
Some of you have been directed to Evanna's site here for the current situation, so below is a brief update. But more details and more ... -
Be Joyful!
We've been pretty open about the difficulties of the past 15 months...but I see these pictures and could not imagine life without her. She is ... -
Special Needs Trust
The next big step for Evanna is the creation of a Special Needs Trust, which is a legal means that allows a disabled person to ... -
The Little Things That Aren't...
A binky and a shape block...that's all they are, right? Nope. In a way they are like reminders of God's goodness. Yesterday I was joking ... -
Christmas Cheer...
After last night's adventures in Seattle Children's ER, we were starting to feel (more) stressed, especially with Christmas coming up. (I'll tag the post on ...