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This Christmas...
...remember the words of the Lord Jesus, how he himself said, ‘It is more blessed to give than to receive.' (Acts 20:35b) We’ve all heard ... -
She's a Fighter...
This picture was a later in the day of Evanna's birth, just back from surgery to close her back and place her shunt. JoAnn was ... -
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Spina Bifida Awareness Month!
October is Spina Bifida Awareness Month. You can read more about what spina bifida is by going to What is...? on the navigation menu, then ... -
What's in a Name?
Friday is this little beauty's birthday. There is so much to celebrate, so many little and so many major things. It's been quite a year. ... -
The First of the Second Opinions...
Today's first second opinion visit took us to Doernbecher Children's Hospital in Portland, where we met with PT, neurosurgery, and the head of the spina ... -
Second Opinions
One of the lessons we try to convey to other parents is the need for them to become their child's biggest advocate for care. While ... -
Special Needs Parenting
Saw this graphic today on Facebook and snagged it, because it so completely summarizes parenting of a special needs child. It's no easy thing, but ... -
Evanna's Love What Matters Video
Evanna's Joyful Laugh "This is my 10-month old, Evanna. She has spina bifida, hydrocephalus, chiari malformation, clubfoot, and since May, severe obstructive and central sleep ...