This picture was a later in the day of Evanna's birth, just back from surgery to close her back and place her shunt. JoAnn was still in two floors away, recovering from the C-section, so it was just her and me for a long time. It was one of the most difficult times. She was…
October is Spina Bifida Awareness Month. You can read more about what spina bifida is by going to What is...? on the navigation menu, then selecting Spina Bifida from the submenu...or by clicking here. One of the reasons for Evanna's site and Facebook page is to bring awareness about spina bifida not just in the…
One of the lessons we try to convey to other parents is the need for them to become their child's biggest advocate for care. While there have been huge advances in the past 30 years in regard to spina bifida treatment, they will undoubtedly run into healthcare professionals that aren't in the specialty fields, and…
Evanna's Joyful Laugh "This is my 10-month old, Evanna. She has spina bifida, hydrocephalus, chiari malformation, clubfoot, and since May, severe obstructive and central sleep apnea...all of which may lead to a shortened life expectancy. Despite these things, and despite her surgeries and hospitalizations, she is joyful...a good reminder for all of us, regardless of…