Main Menu

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?
logo

Evanna's Joy

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?
Home›Category: "Uncategorized" (Page 2)

Uncategorized

  • Pacific Science Center & Seattle Center Playground

    Uncategorized
    March 2, 2019
    by JoAnn Kuhn
    Driving all the way to Seattle for a single thirty minute appointment sucks. That's why we got a membership at the Pacific Science Center; if the appointment was early enough ...
    Read More
  • Don't Say Can't; Say How

    Uncategorized
    February 26, 2019
    by JoAnn Kuhn
    Our goal for Evanna has always been inclusion in every way possible... When we first found out she would be coming home from her shunt revisions with as bipap, we ...
    Read More
  • Baking Cookies

    Fun Things to Do, Uncategorized
    February 14, 2019
    by JoAnn Kuhn
    With snow cancelling all of our appointments and activities this past week, we've been enjoying a relaxing week at home. Today, Evanna asked to be in her stander, and I ...
    Read More
  • These are a Few of My Favorite Things

    Uncategorized
    February 7, 2019
    by JoAnn Kuhn
    (To the tune of the song, please sing along.) Tickles on my knees And kicking my toes-es Talking and eating and drinking large doses Sitting and standing to reach for ...
    Read More
  • Look at My New Skill

    Uncategorized
    January 23, 2019
    by JoAnn Kuhn
    Evanna has learned to say "no" to doing things that are "hard," so we have to find creative ways to motivate her to work on these harder skills. This was ...
    Read More
  • Thankful...

    Uncategorized
    November 22, 2018
    by Scott
    With today being Thanksgiving, I thought it fitting to write about thankfulness. Plus it's been on my mind for weeks. And last night as I drive the boys to Scouts, ...
    Read More
  • Evanna's Surgery...and Moving

    Uncategorized
    July 8, 2018
    by Scott
    Some of you have been directed to Evanna's site here for the current situation, so below is a brief update. But more details and more timely posts will be on ...
    Read More
  • Special Needs Trust

    Uncategorized
    January 1, 2018
    by Scott
    The next big step for Evanna is the creation of a Special Needs Trust, which is a legal means that allows a disabled person to accrue funds for a variety ...
    Read More
  • The Little Things That Aren't...

    Uncategorized
    December 18, 2017
    by Scott
    A binky and a shape block...that's all they are, right? Nope. In a way they are like reminders of God's goodness. Yesterday I was joking that with Evanna's increased mobility ...
    Read More
  • This Christmas...

    Uncategorized
    December 13, 2017
    by Scott
    ...remember the words of the Lord Jesus, how he himself said, ‘It is more blessed to give than to receive.'  (Acts 20:35b) We’ve all heard the saying. And many of ...
    Read More
← 1 2 3 →
© Copyright Evanna's Joy. All rights reserved.