Our goal for Evanna has always been inclusion in every way possible...
When we first found out she would be coming home from her shunt revisions with as bipap, we had already paid-for plans for camping. We could have cancelled. We could have split up, with one of us taking the other kids while the other stayed home with Evanna. Instead, we said how can we still include Evanna in our camping plans. The answer included the purchase of a generator and a battery-operated pulse oximeter, the help of several friends, and a whole lot of pre-planning, but she went camping.
Taken during our second camping trip with the ventilator.
When we started blending food for her g-tube nutrition and another camping trip came up, we brought the Vitamix with us. We failed to check if the generator could actually run the Vitamix; it can't. After double checking the bathroom for an electrical outlet, I strollered that heavy machine prefilled with her serving of hamburger and potato chips to the bathroom to blend. Problem solved.
When it came to ordering her wheelchair, we thought about our homeschool and family activities and pushed for three separate doctors to write letters of medical necessity for a freewheel to provide better accessibility to the types of places we would need it.
Easy trails, pumpkin patch, 2 inches of snow are all accessible.
When our homeschool group plans a visit to the nearby trampoline place, we go and see what we CAN do.
She's not a fan, but enjoyed stacking, knocking over, and throwing the foam blocks.
