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Evanna's Joy

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?

Latest Articles

  • Uncategorized
    July 8, 2018
    by Scott

    Evanna's Surgery...and Moving

    Some of you have been directed to Evanna's site here for the current situation, so below is a brief update. But more details and more ...
    Read More
  • Spina Bifida
    January 4, 2018
    by Scott

    Be Joyful!

    We've been pretty open about the difficulties of the past 15 months...but I see these pictures and could not imagine life without her. She is ...
    Read More
  • Uncategorized
    January 1, 2018
    by Scott

    Special Needs Trust

    The next big step for Evanna is the creation of a Special Needs Trust, which is a legal means that allows a disabled person to ...
    Read More
  • Uncategorized
    December 18, 2017
    by Scott

    The Little Things That Aren't...

    A binky and a shape block...that's all they are, right? Nope. In a way they are like reminders of God's goodness. Yesterday I was joking ...
    Read More
  • Christmas
    December 16, 2017
    by Scott

    Christmas Cheer...

    After last night's adventures in Seattle Children's ER, we were starting to feel (more) stressed, especially with Christmas coming up. (I'll tag the post on ...
    Read More
  • Uncategorized
    December 13, 2017
    by Scott

    This Christmas...

    ...remember the words of the Lord Jesus, how he himself said, ‘It is more blessed to give than to receive.'  (Acts 20:35b) We’ve all heard ...
    Read More
  • Hospital, Spina Bifida
    November 21, 2017
    by Scott

    She's a Fighter...

    This picture was a later in the day of Evanna's birth, just back from surgery to close her back and place her shunt. JoAnn was ...
    Read More
  • Uncategorized
    October 5, 2017
    by Scott

    Why We Share...

    This is a post my wife wrote on Evanna's FB page.
    Read More
  • Spina Bifida
    October 2, 2017
    by Scott

    Spina Bifida Awareness Month!

    October is Spina Bifida Awareness Month. You can read more about what spina bifida is by going to What is...? on the navigation menu, then ...
    Read More
  • Uncategorized
    September 28, 2017
    by Scott

    What's in a Name?

    Friday is this little beauty's birthday. There is so much to celebrate, so many little and so many major things. It's been quite a year. ...
    Read More
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