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Evanna's Joy

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?

Latest Articles

  • Uncategorized
    August 24, 2017
    by Scott

    The First of the Second Opinions...

    Today's first second opinion visit took us to Doernbecher Children's Hospital in Portland, where we met with PT, neurosurgery, and the head of the spina ...
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  • Spina Bifida
    August 22, 2017
    by Scott

    Second Opinions

    One of the lessons we try to convey to other parents is the need for them to become their child's biggest advocate for care. While ...
    Read More
  • Uncategorized
    August 19, 2017
    by Scott

    Special Needs Parenting

    Saw this graphic today on Facebook and snagged it, because it so completely summarizes parenting of a special needs child. It's no easy thing, but ...
    Read More
  • Spina Bifida
    August 13, 2017
    by Scott

    Evanna's Love What Matters Video

    Evanna's Joyful Laugh "This is my 10-month old, Evanna. She has spina bifida, hydrocephalus, chiari malformation, clubfoot, and since May, severe obstructive and central sleep ...
    Read More
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