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The First of the Second Opinions...
Today's first second opinion visit took us to Doernbecher Children's Hospital in Portland, where we met with PT, neurosurgery, and the head of the spina ... -
Second Opinions
One of the lessons we try to convey to other parents is the need for them to become their child's biggest advocate for care. While ... -
Special Needs Parenting
Saw this graphic today on Facebook and snagged it, because it so completely summarizes parenting of a special needs child. It's no easy thing, but ... -
Evanna's Love What Matters Video
Evanna's Joyful Laugh "This is my 10-month old, Evanna. She has spina bifida, hydrocephalus, chiari malformation, clubfoot, and since May, severe obstructive and central sleep ...