We bought Evanna this crazy, noisy rubber chicken. She came up with a way to squeeze it that works out her arms. We are still working on her form though. LOL Archive note: this video could not be recovered. We are also working on her abs with sit ups. I'm not helping her at all;…
Many things have occurred to get us to where we are now: 1) Evanna's spinal cord detethering surgery resulted in an increased ability in swallowing and interest in eating. 2) Evanna passed her most recent swallow study for all thicknesses. She's supposed to limit thin liquids to small amounts while she practices, so we finally…
Evanna has always been sensitive to environmental stimuli. In the NICU, she required a calm, quiet, low light environment and gentle, slow handling. Add noise, light, or a nurse who "gets it done" and she would be stressed, irritable, and crying. As she's gotten older, her tolerance for loud sounds has improved. She will comment,…