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Evanna's Joy — This Is My Story

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The *OTHER* Evanna’s Joy

Blog   ·  

Stumbled across this--a hibiscus cultivar with the same name, that won the #2 Seedling of the Year award in the 2023 cycle, from Matt and Barbara Martindale in Florida. Sent a message via their website to ask about the naming. Will update when I hear back, but may need to get one next spring just…

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Les Gove Park, Auburn

Accessibility, Blog   ·  

Evanna loves being outside. Parks, however, are rarely truly accessible and inclusive despite being labeled as such or meeting ADA guidelines. As we visit area parks, we plan to document how well we feel they meet our idea of accessible, inclusive, and fun from the viewpoint of a young child in a wheelchair. We are…

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Exercise Evanna’s Way

Adapting, Blog, spina bifida   ·  

We bought Evanna this crazy, noisy rubber chicken. She came up with a way to squeeze it that works out her arms. We are still working on her form though. LOL Archive note: this video could not be recovered. We are also working on her abs with sit ups. I'm not helping her at all;…

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Weaning from the G-tube

Adapting, Blog, spina bifida   ·  

Many things have occurred to get us to where we are now: 1) Evanna's spinal cord detethering surgery resulted in an increased ability in swallowing and interest in eating. 2) Evanna passed her most recent swallow study for all thicknesses. She's supposed to limit thin liquids to small amounts while she practices, so we finally…

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