"It's so great that you let her be independent." "You do so many cool things." "It's so awesome you guys let her do almost everything." "You are crazy to be trying to take a wheelchair out in a foot of snow, on an inaccessible trail,..." Ok, I made the last one up because sometimes I…
With Evanna doing so much better with sitting on a bench and then pulling herself to a stand, high kneeling, and other physical tasks, I pushed to get her in a walker again. So we made plans to arrive at PT without her AFOs for kneeling (which is better without them) and then putting in…
Evanna has always been sensitive to environmental stimuli. In the NICU, she required a calm, quiet, low light environment and gentle, slow handling. Add noise, light, or a nurse who "gets it done" and she would be stressed, irritable, and crying. As she's gotten older, her tolerance for loud sounds has improved. She will comment,…