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A Wheelchair User's Experience of the Hands On Children's Museum in Olympia, WA
Yesterday, we visited the Hands On Children's Museum in Olympia. It was our first visit with her wheelchair. The fact that we stayed four and ... -
When Did She Learn That?!
So this happened today. A few minutes later, I was parked and snuck a video through my rearview mirror as she did it again. -
Personal Care Aide
It's a lot of work taking care of your average toddler. It's even more when that toddler needs to be cathed every three hours, have ... -
Look at My New Skill
Evanna has learned to say "no" to doing things that are "hard," so we have to find creative ways to motivate her to work on ... -
New Pulmonologist, New Hope
What could be better than Evanna demanding to eat her snack pouch orally? A new pulmonologist who actually listens to you, agrees with you, and ... -
Quality of Life
One of the main sources of fear and concern at the time of a spina bifida diagnosis, brought to us by doctors and nurses, is ... -
Thankful...
With today being Thanksgiving, I thought it fitting to write about thankfulness. Plus it's been on my mind for weeks. And last night as I ... -
Beyond the ADA
In preparing my thoughts for my meeting with the local Parks & Rec director (not quite at the planning stage, but formulating ideas), I came ... -
Evanna's Surgery...and Moving
Some of you have been directed to Evanna's site here for the current situation, so below is a brief update. But more details and more ...