Main Menu

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?
logo

Evanna's Joy

  • Home
  • About
  • Silverwood
  • Contact
  • What is...?
    • What is Spina Bifida?
    • What is Hydrocephalus?
    • What is Chiari II Malformation?
    • What is Clubfoot?
    • What is a G-Tube?

Latest Articles

  • Accessibility, ADA
    February 3, 2019
    by Scott

    ADA Compliance and Playgrounds

    The Americans with Disabilities Act, signed into law in 1990 by President George H.W. Bush (and amended in 2008), provides disabled Americans with protections similar ...
    Read More
  • Accessibility, Fun Things to Do, Tackling Life Head On
    January 30, 2019
    by JoAnn Kuhn

    A Wheelchair User's Experience of the Hands On Children's Museum in Olympia, WA

    Yesterday, we visited the Hands On Children's Museum in Olympia. It was our first visit with her wheelchair. The fact that we stayed four and ...
    Read More
  • Milestones
    January 29, 2019
    by JoAnn Kuhn

    When Did She Learn That?!

    So this happened today. A few minutes later, I was parked and snuck a video through my rearview mirror as she did it again.
    Read More
  • Resources for Special Needs
    January 28, 2019
    by JoAnn Kuhn

    Personal Care Aide

    It's a lot of work taking care of your average toddler. It's even more when that toddler needs to be cathed every three hours, have ...
    Read More
  • Milestones, Tube Feeding
    January 26, 2019
    by JoAnn Kuhn

    Let's Eat

    After twelve days of eating no more than a tiny bite or two a day (while sick with a cold), Evanna decided she wanted to ...
    Read More
  • Uncategorized
    January 23, 2019
    by JoAnn Kuhn

    Look at My New Skill

    Evanna has learned to say "no" to doing things that are "hard," so we have to find creative ways to motivate her to work on ...
    Read More
  • Doctors & Therapists
    January 10, 2019
    by JoAnn Kuhn

    New Pulmonologist, New Hope

    What could be better than Evanna demanding to eat her snack pouch orally?  A new pulmonologist who actually listens to you, agrees with you, and ...
    Read More
  • Spina Bifida
    January 1, 2019
    by Scott

    Quality of Life

    One of the main sources of fear and concern at the time of a spina bifida diagnosis, brought to us by doctors and nurses, is ...
    Read More
  • Uncategorized
    November 22, 2018
    by Scott

    Thankful...

    With today being Thanksgiving, I thought it fitting to write about thankfulness. Plus it's been on my mind for weeks. And last night as I ...
    Read More
  • ADA, Spina Bifida
    November 20, 2018
    by Scott

    Beyond the ADA

    In preparing my thoughts for my meeting with the local Parks & Rec director (not quite at the planning stage, but formulating ideas), I came ...
    Read More
← 1 2 3 4 5 6 →
© Copyright Evanna's Joy. All rights reserved.