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She PASSED!!!
That ice cream...that's doctor approved! Evanna passed her swallow study and is now allowed to eat and drink whatever she wants...small quantities of thin liquids ... -
An Order of Anxiety, Please
It's been 22 months since that horrible shunt revision turned fifteen days hospital stay. Since then, we've have numerous pleasant outpatient appointments and a successful-all-went-better-than-expected ... -
G-tube-Free Appears on the Distant Horizon
We've shared before... Ever since her detethering surgery, Evanna's interest in and ability to eat orally has changed dramatically. That hasn't changed. On the way ... -
Pacific Science Center & Seattle Center Playground
Driving all the way to Seattle for a single thirty minute appointment sucks. That's why we got a membership at the Pacific Science Center; if ... -
Our Library: A Great Storytime & Great Staff
We haven't been to story time at the library for quite a while. Evanna was totally into it today. The librarian read Tip Tip Dig ... -
Don't Say Can't; Say How
Our goal for Evanna has always been inclusion in every way possible... When we first found out she would be coming home from her shunt ... -
Baking Cookies
With snow cancelling all of our appointments and activities this past week, we've been enjoying a relaxing week at home. Today, Evanna asked to be ... -
It's Too Loud
Evanna has always been sensitive to environmental stimuli. In the NICU, she required a calm, quiet, low light environment and gentle, slow handling. Add noise, ... -
These are a Few of My Favorite Things
(To the tune of the song, please sing along.) Tickles on my knees And kicking my toes-es Talking and eating and drinking large doses Sitting ... -
Snow Day...No Problem
We pushed hard to make sure Evanna's wheelchair was ordered with a freewheel accessory included. We asked three of her providers to write letters of ...
